Publications & Projects
Understanding Epilepsy: A Comprehensive Guide
August 6, 2024Stigma Intervention: Utilizing the IBE Stigma Toolkit among Individuals with Epilepsy and Key Community Players in Malindi, Kilifi County, Kenya
Aim: The goal of this project is to implement anti-stigma interventions that raise awareness, reduce stigmatization, and promote empathy towards individuals affected by epilepsy. This projects also aim to enhance communication skills training for healthcare providers (HCPs) to ensure that people with epilepsy (PWE) receive the empathy and necessary support.
Other objects are:
- Increase knowledge about epilepsy among PWE, caregivers, HCPs, traditional healers, and faith healers to improve understanding of the condition, alleviate fears, and educate individuals on the entitlements and rights of PWE.
- Enhance the quality of life for PWE.
- Establish Epilepsy Champions in each administrative unit within Malindi subcounty.
Project stage: Ongoing
Making Epilepsy a Health Priority in Kilifi County, Kenya by Implementation of National Guidelines on Epilepsy Management
Aim: The primary focus in this project is to improve the quality of care provided to individuals with epilepsy by promoting the adoption of standardized guidelines. By disseminating the Kenya National Guideline on epilepsy management, we aim to ensure that healthcare professionals across various sectors are equipped with the necessary knowledge and tools to effectively manage epilepsy cases.
Study stage: Ongoing
Improving livelihood of children with neurodevelopmental disorders
Aim: To improve quality of life for children with neurodevelopmental disorders and epilepsy by providing support that involves offering educational resources, medication, and empowering both caregivers and children through income-generating activities.
Study stage: Ongoing
ICT Centre for youth with epilepsy
Aim: The objective of the ICT Centre is to enhance computer skills among youth with epilepsy residing in rural areas. This initiative aims to equip them with the necessary knowledge and abilities to thrive in the job market, while also fostering computer literacy.
Study stage: Ongoing
The Role of Trained Epilepsy Counselor in Combating Psychological Consequences of Epilepsy in Rural Kenya
Aim: To improve the psychological well-being of patients with epilepsy visiting a rural community clinic by providing counseling services from a trained counselor with some expertise in epilepsy
Study stage: completed 2016
Using Community Health Clinics to Improve Access to Drugs and Clinical Care in Epilepsy in Rural Kenya
Aim: To showcase and present our experience with a strategy to combat the epilepsy treatment gap using community owned health kiosks linked to enterprises and community health insurance schemes in Kilifi county,
Study stage: Completed 2014
“The government is responsible for our plight” Poor access to health care and education for children neuro-developmental disorders and Epilepsy in Malindi-Magarini region, Kilifi County
Aim: To identify the challenges encountered by children with epilepsy and their caregivers in the Malindi-Magarini region and propose effective solutions to address these issues.
Study stage: completed 2022
Results Click here to download a PDF
Uhalisia wa Kifafa
Aim: This booklet is meant to help patients with epilepsy, their families, caregivers and the general public have a good understanding of the condition and participate in the treatment process.
Study stage: completed 2022
Results Click here to download a PDF